PMMNG Home Page

twitterfacebook

2017 Miles for Myeloma 5K Walk/Run
Congratulations and a Great Big Thank You to everyone who participated in our 2017 Miles For Myeloma 5K on Saturday April 22 at Fairmont Park in Philadelphia, making it a big success! Your enthusiasm not only held the rain off, but, more importantly, it raised money that the PMMNG will donate to the International Myeloma Foundation (IMF). The IMF will use it to fund research aimed at finding a cure for multiple myeloma.

—————————————————————————————————–

This is the official site of the Philadelphia Multiple Myeloma Networking Group (PMMNG). Our mission is to provide online information, support, shared experiences and hope for Delaware Valley residents (and their family and friends) living with multiple myeloma.

We meet in Philadelphia and welcome all MMers, family members, support persons and friends from the Delaware Valley Tri-State Region. Parking is available in a private lot next to our building, with convenient wheelchair access. We are easy to reach by SEPTA train, trolley and bus routes.

Monthly Meeting Information

WHEN: Second Saturday of every month, 1:30-3:30 PM
WHERE: RALSTON HOUSE, 3615 Chestnut Street, Philadelphia, PA
(Near the University of Pennsylvania Campus)
There is free parking behind Ralston House off of Ludlow Street.

PMMNG-Caring Corner-crop

5 comments on “PMMNG Home Page

  1. Shaun Fisher on said:

    My father was diagnosed with Multiple Myeloma in September. His numbers/markers are down to almost 1. However, he is still having much back pain and is not sure that it is really from the Myeloma anymore. He is not sure which way to go with this anymore. Would the support group be of some help in this respect?

    Thank you for your time.

    • Hi Shaun,
      Mike Burns here. Thanks for your comment and question. Yes, the support group probably would be a help to your father. It’s an opportunity for him to meet other people who are dealing with multiple myeloma and discuss the issues he is facing. Of course, with the specific question you’ve asked, it also would be good for your father to discuss this with his oncologist.

      Best wishes to both you and your father. Hope to see you at an upcoming meeting!
      Mike

  2. Tom Agnew on said:

    I have been recently diagnosed with Multiple Myeloma and am interested in joining the Philadelphia support group. Am I required to register before the meeting or do I just attend without prior notification? Thank you in advance for your response.

    Tom

    • admin on said:

      Hi Tom,
      First of all, I’m sorry to hear about your recent diagnosis. However, you’ll find the PMMNG meetings to be a place to meet other multiple myeloma patients (and caregivers) and to get lots of valuable information.

      No need to register ahead of time. Just show up and we’ll be happy to see you.

      Mike

  3. George Baran on said:

    Not sure where to post this question, but I was wondering if anyone in the group has experience with or knows someone who has been on dexamethasone for a while and has developed significant fat deposits under the chin. The FDA has approved injections of a drug called Kybella to reduce chin fat, but I don’t know if this is appropriate for a decadron user.
    Thanks,
    George

Leave a Reply to George Baran Cancel reply

Your email address will not be published. Required fields are marked *

*

* Copy This Password *

* Type Or Paste Password Here *

36,296 Spam Comments Blocked so far by Spam Free Wordpress

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>