Saturday March 11, 2017: Mary DeRome – “MMRF’s Precision Medicine Initiative”

For this meeting we welcome Mary DeRome, Director of Medical Communications and Education at the MMRF (Multiple Myeloma Research Foundation), who will discuss their Precision Medicine Initiative, the CoMMpass Study which maps patients’ genomic profiles to clinical outcomes, and the CoMMunity Gateway program which enables patients to get news about treatment and connect with others with myeloma. If you can, please bring a dessert to share.

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus).

The “official” start time for the meeting is 1:30, but feel free to come as early as 1:00 since we gather early and chat before meetings. This is an especially good opportunity for newcomers to meet current members and exchange information.

There is free parking behind the building, accessible from Ludlow Street.

Saturday February 11, 2017: Adam D. Cohen, MD – “Highlights from ASH 2016”

This month’s program will be a presentation of highlights about Multiple Myeloma research and treatment from the recent annual ASH (American of Society of Hematology) meeting. Our speaker will be  Adam D. Cohen, MD, Assistant Professor and Director of Myeloma Immunotherapy at the Abramson Cancer Center of the U of Pennsylvania. He will also provide a general overview of how immunotherapy is being used in treating myeloma. Lunch will be provided by Takeda Pharmaceuticals.

Dr. Cohen’s slides

The “official” start time for the meeting is 1:30, but feel free to come as early as 1:00 since we gather early and chat before meetings. This is an especially good opportunity for newcomers to meet current members and exchange information.

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus).

There is free parking behind the building, accessible from Ludlow Street.

Saturday January 14, 2017: Jessica Perrella, MSW – “Emotional and Sexual Effects of Multiple Myeloma Treatments”

Hello PMMNG Friends,

At our January program, Jessica Perrella, MSW, will address the emotional and sexual effects of cancer treatments, specifically for people with multiple myeloma. Participants will have the opportunity to ask questions related to sexuality, intimacy, relationships and family dynamics. Jessica is the Director of New Projects and Initiatives at the Cancer Support Community of Philadelphia where she also provides emotional support and educational programs for individuals and families affected by cancer.

Slides from Jessica’s presentation

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus). There is free parking behind the building, accessible from Ludlow Street.

Newcomers are especially welcome.

Saturday December 10, 2016 – Our Annual Holiday Celebration

Hello PMMNG Friends,

The December 10th meeting will be our annual holiday celebration – a time to reflect on the past year and to share hopes and plans for 2017. Everyone will receive a star for their name badge to indicate another year of living with a Myeloma diagnosis. If you can, please bring an appetizer, finger food or dessert to share and enjoy

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus). There is free parking behind the building, accessible from Ludlow Street.

Newcomers are especially welcome.

Saturday November 12, 2016: “From Uninsured to Underinsured: Strategies to Improve Financial Well-Being During and After Cancer Treatment” by Christina Bach

At our November meeting, Christina Bach, MBE, MSW, LCSW, will be speaking on the topic “From Uninsured to Underinsured: Strategies to Improve Financial Well-Being During and After Cancer Treatment”. In addition to addressing health insurance concerns, she will provide information about the new oral parity law that was recently passed in PA. Christina, a long-time oncology social worker, is currently the Educational Content Specialist and Psychosocial Content Editor for Oncolink, an online resource for cancer information.

Slides from Christina’s presentation

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus). There is free parking behind the building, accessible from Ludlow Street.

Newcomers are especially welcome.

Saturday October 8, 2016: Patient and Caregiver Split

For the October meeting, we will be splitting into Patient and Caregiver groups after the general announcements. Each group will have a facilitator and will be an opportunity for questions, discussions and information-sharing with others who are in a similar situation.

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus). There is free parking behind the building, accessible from Ludlow Street.

Newcomers are especially welcome.

September 10, 2016: Open Meeting for Sharing Information and Experiences

Hello PMMNG friends,

Our next meeting will be Saturday September 10, 2016. This will be an open meeting for sharing information and experiences. As we wind down the summer and begin transitioning into autumn, this will be a good chance to check in and share how we have all been doing, as well an opportunity to catch up on the latest myeloma-related news. We hope you will be able to join us!

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus). There is free parking behind the building, accessible from Ludlow Street.

Newcomers are especially welcome.

Mike Burns (PMMNG webmaster)

August, 2016: No Meeting

Hello PMMNG friends,

Just a reminder that there will be no PMMNG meeting in August, as is our custom. Our next meeting will be on Saturday September 10, 2016. As we get closer to that date, we’ll provide information about the program for the meeting.

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus). There is free parking behind the building, accessible from Ludlow Street.

Newcomers are especially welcome.

Best wishes for a healthy and happy remainder of the summer.

July 9, 2016 Meeting: Paitent & Caregiver Split

In July, we will be splitting into Patient and Caregiver groups after the general announcements. Each group will have a facilitator and will be an opportunity for questions, discussions and information-sharing with others who are in a similar situation.

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus). There is free parking behind the building, accessible from Ludlow Street.

Newcomers are especially welcome.

June 11, 2016 Meeting: Multiple Myeloma & Dental Concerns

Hello PMMNG Friends,

At our June 11th meeting, Gary Jones, DDS, Associate Clinical Professor at Temple University’s Kornberg School of Dentistry, will speak on specific dental concerns for people with multiple myeloma, such as infections and  osteonecrosis of the jaw (ONJ), as well as how to best maintain good oral health.

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus). There is free parking behind the building, accessible from Ludlow Street.

Newcomers are especially welcome.