Summer Break

A reminder that the PMMNG does not meet in the month of August. We look forward to seeing you in September, when our guest will be Dr. Brendan Weiss of HUP, discussing details of smoldering myeloma. Enjoy your summer break…stay cool and healthy!

July 12 Meeting: Patient and Caregiver Open Discussions

The PMMNG holds its last summer meeting of 2014 on Saturday, July 12, with separate open discussions for patients and caregivers, supplying an opportunity to share opinions freely. An excellent opportunity to bond with your peers, get some advice or just listen in.

  • 1:30 PM:  General announcements
  • 1:45 PM:  Open Discussion
  • 2:00 PM:  Patient-Caregiver Split

Please join us, whether you’re a long-time member of the group or have reason to consider attending for the first time.

THE PMMNG WILL NOT MEET IN AUGUST.

Monthly Meeting Information

WHEN: Second Saturday of Every Month, 1:30 – 3:30 PM
WHERE: RALSTON HOUSE, 3615 Chestnut Street, Philadelphia, PA
(Near the University of Pennsylvania Campus)
There is free parking behind Ralston House off of Ludlow Street.

ACOR Myeloma Listserv Migrating to Smart Patients on June 15th

“For the past few months, we have been in the process of migrating the ACOR myeloma listserv to a new platform developed by the founders of ACOR called Smart Patients. Thus far, we’ve had almost 800 people sign up for the new platform and begin using SmartPatients. If you haven’t already done so, you can sign up for SmartPatients by going to http://smartpatients.com/myeloma

“As we had said some time ago, the ACOR list will be deactivated on June 15th. This means that the listserv will not accept new subscriptions or new posts after that date. The archives will remain accessible to current subscribers indefinitely.

“Please feel free to email me privately with any questions/issues. I am trying to schedule a webinar in a few weeks to walk through how the site works and answer questions.”

Mike Katz

Mike.S.Katz@STRATEGYAND.PWC.COM

June 14 Meeting: Understanding Serum Free Light Chain Tests, with Naveen Bangia, PhD

Our next group meeting occurs Saturday, June 14, when Dr. Naveen Bangia, Director of Scientific Affairs at The Binding Site, will be our guest lecturer, speaking about “Understanding Serum Free Light Chain Tests.” The Binding Site specializes in the research, development and manufacture of innovative, high quality, immunodiagnostic assays in the fields of multiple myeloma (and other B cell disorders) and investigation of the immune response.

PMMNG meetings are held the second Saturday of every month, 1:30-3:30 PM, at the RALSTON HOUSE, 3615 Chestnut Street, Philadelphia, PA (Near the University of Pennsylvania Campus). There is free parking behind Ralston House off of Ludlow Street.

Newcomers are especially welcome.

May 10 Meeting: Open Discussion

Our next meeting is Saturday, May 10, at the Ralston House. General announcements begin at 1:30 PM, followed by an open discussion at approx. 1:45 PM.  Please join us and get valuable information from your fellow members about their experiences with stem cell transplants, chemotherapy, and other issues related to myeloma.

As always, newcomers are greatly welcomed.

PMMNG Monthly Meetings
Second Saturday of every month
1:30 PM – 3:30 PM
Ralston House, 3615 Chestnut Street, Philadelphia, PA

(Near the University of Pennsylvania Campus)

Opportunity Drawing Update

There has been an upgrade in one of our prizes for the opportunity drawing.

Our 2nd prize will be a 48″ TV, (not the 40″ that was previously advertised)

Please be prepared to bring in any unsold tickets and purchase new ones at this Saturday’s (April 12) meeting.  If you still want to sell tickets and will be at the race, you can bring them at that time or mail them to:

Marilyn Alexander
1605 Steamboat Station
Southampton, PA 18966

Thanks and good luck!

April 12 Meeting with Susan Cunneen, RN

Join us on Saturday, April 12, when we will feature Susan Cunneen, RN, Oncology Clinical Nurse Educator at Onyx Pharmaceuticals.

Ms. Cunneen graduated with a Bachelor of Science in Business Administration in 1988 and subsequently spent over 20 years in the pharmaceutical industry in sales, sales management and marketing. Her specialties were in the areas of infectious diseases and oncology. While working in oncology, Susan was so moved by the patients and by the oncology nurses with whom she worked that she decided to go back to school to get a clinical degree. She went to Georgetown University where she received a Bachelor of Science in Nursing, and then worked as an inpatient oncology nurse at the Washington Hospital Center. Susan now is a clinical nurse educator with Onyx Pharmaceuticals in the mid-Atlantic area.  Her role is to educate oncology nurses as well as work directly with myeloma patients.

As always, newcomers are greatly welcomed.

PMMNG Monthly Meetings
Second Saturday of every month
1:30 PM – 3:30 PM
Ralston House, 3615 Chestnut Street, Philadelphia, PA

(Near the University of Pennsylvania Campus)

Miles for Myeloma 2014 Fundraiser — Info and Updates

As announced on our home page weeks ago, our 2014 Miles for Myeloma fundraiser is open for business, prepping to take place on Saturday, April 26, in a new location: Memorial Hall (site of the Please Touch Museum) in Philadelphia’s beautiful Fairmount Park.

Complete information is available on our site, just CLICK HERE for everything you need to know about registration, donations, team building, course info and more.

Direct links for Registration and Donations.

For more information, please contact Karen Horan at karen.horan@verizon.net.