May 9 Meeting: “Emotional Resilience”

Please join us at our next group meeting on Saturday, May 9, when we will feature Shari Baron, MSN, CNS, CGP, a psychotherapist in private practice who has worked for over 20 years with people affected by cancer. Ms. Baron will speak on the topic of emotional resilience after cancer diagnosis and during treatments.

PMMNG meetings are held the second Saturday of every month, 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (Near the University of Pennsylvania Campus). There is free parking behind Ralston House, accessible from Ludlow Street.

Newcomers are especially welcome.

Sen. Pat Toomey and wife, Kris, are running for a cause: The 7th Annual ‘Miles for Myeloma 5K Run/Walk’

The Philadelphia Multiple Myeloma Networking Group (PMMNG) is pleased to announce that its 7th Annual Miles for Myeloma 5K Run/Walk (MFM) will feature special guests,  Senator Pat Toomey (PA) and his wife, Kris Toomey. The event will take place on Saturday, April 25, at 8:30 a.m., in Fairmount Park, with a kick off at Memorial Hall, 4231 Avenue of the Republic.

Multiple myeloma (MM) is a form of blood cancer that arises from plasma cells — a type of white blood cell found in bone marrow that affected an estimated 24,050 adults in the United States last year.

It will be “Toomey vs. Toomey” as Senator Toomey and his wife Kris, whose mother is battling multiple myeloma, take part in a race together for the very first time. In addition to raising money for a worthy cause, the Senator and his wife will also compete against each other for family bragging rights.

“We are honored to have Senator and Mrs. Pat Toomey kick off our program,” said Event Organizer Karen Horan.

Glenn “Hurricane” Schwartz, Chief Meteorologist from NBC10, will serve as Master of Ceremonies. Other participants include Dr. Dan Vogl, a leading expert in myeloma from the University of Pennsylvania, and fan favorite, the lovable Phillies Phanatic.

“The Miles for Myeloma 5K Run/Walk will bring over 1,200 multiple myeloma patients, their family, friends and medical teams together to raise awareness about the disease and the much needed funding for the most promising research initiatives and local patient support programs,” said Horan.

Proceeds from this event will benefit the research initiatives of the International Myeloma Foundation (IMF) and the Multiple Myeloma Research Foundation (MMRF), as well as local financial assistance and local patient support programs provided by the Leukemia & Lymphoma Society (LLS) and Philadelphia Multiple Myeloma Networking Group (PMMNG). Since its inception in 2009, the run/walk has raised more than $750,000 to help fund advanced research initiatives and support local patient programs.

For information about PMMNG or to register for Miles for Myeloma 5K, please visit www.philadelphia.myeloma.org and follow on Facebook at (www.facebook.com/PMMNG) and on Twitter (@PMMNG).

Click here to download full press release (PDF).

April 11 Meeting: Open Discussion

Please join us at our next group meeting on Saturday, April 11, which will feature general open discussion among all members (patients and caregivers). An excellent time to bond with your peers, get some advice or just listen in.

PMMNG meetings are held the second Saturday of every month, 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (Near the University of Pennsylvania Campus). There is free parking behind Ralston House, accessible from Ludlow Street.

Newcomers are especially welcome.

March 14 Meeting: “Cancer Fitness and Fatigue”

Please join us at our next group meeting on Saturday, March 14, when we will feature Andrea Branas, MSE, MPT, CLT, Lead Physical Therapist, Abramson Cancer Center, speaking on “Cancer Fitness and Fatigue.”

PMMNG meetings are held the second Saturday of every month, 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (Near the University of Pennsylvania Campus). There is free parking behind Ralston House, accessible from Ludlow Street.

Newcomers are especially welcome.

PMMNG Annual Report, 2009 – 2014

The Philadelphia Multiple Myeloma Group is proud to post its first Annual Report, covering the years 2009 – 2014. As we reflect back on the past five years, we are so pleased to see the growing impact that our organization has had on the myeloma community in the greater Philadelphia area and beyond.

Since forming our 501(c)(3) non-profit entity in 2009, we have seen our membership grow to over 400 individuals; our educational programs expand to feature leading experts in the treatment and quality of life issues of living with myeloma; and the funds we have raised for research and patient support programs near $750,000. Along the way, our reach within the community has multiplied through our partnerships with medical staff at local cancer centers that increasingly refer patients and their families to our group.

February 14 Meeting: ASH Update with Dr. Dan Vogl

Please join us at our next group meeting on Saturday, February 14, when we will feature frequent guest speaker Dr. Dan Vogl, of the Abramson Cancer Center. Dr. Vogl is the Medical Advisor to the PMMNG (along with Dr. Edward Stadtmauer), and will report on recent research findings from the American Society of Hematology’s Annual Meeting of December 2014.

UPDATE: Dr. Vogl’s presentation, New Therapeutic Data and Novel Agents for Myeloma: Update from ASH 2014,” is now available for download (PDF). We greatly appreciate Dr. Vogl making this report available to our members.

PMMNG meetings are held the second Saturday of every month, 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (Near the University of Pennsylvania Campus). There is free parking behind Ralston House, accessible from Ludlow Street.

Newcomers are especially welcome.

Call for Nominations for the Brian Durie Humanitarian Award

The Philadelphia Multiple Myeloma Networking Group is seeking nominees for the Brian Durie Humanitarian Award, presented annually to someone who has made a positive difference in the field of myeloma treatment. The award will be given at our upcoming “Miles for Myeloma” fundraiser on April 25, 2015. Dr Brian Durie is a world-renowned myeloma specialist, and the Medical Director and Co-Founder of the International Myeloma Foundation, who has been very supportive of our group for many years. We honor him at our annual fundraisers by acknowledging in his name an individual who has made an impact in the effort to fight myeloma.

The nominee should be committed to finding a cure for myeloma, whether through research, education, financial support or volunteering. This person can be a medical professional, such as a doctor or a nurse, or other individuals in non-medical fields, such as a social worker, educator, philanthropist, fundraiser or caregiver. We are looking for people who inspire you and offer you and your family a sense of hope.

DEADLINE: March 15, 2015

Click here to download the nomination form.

E-mail completed nomination forms (as attachments) to any of our following board members:

Sharon Alexander: salex16@comcast.net
Marilyn Alexander: malex19115@comcast.net
Nancy Stewart: n_nstewart@msn.com

Thank you!