Saturday December 10, 2016 – Our Annual Holiday Celebration

Hello PMMNG Friends,

The December 10th meeting will be our annual holiday celebration – a time to reflect on the past year and to share hopes and plans for 2017. Everyone will receive a star for their name badge to indicate another year of living with a Myeloma diagnosis. If you can, please bring an appetizer, finger food or dessert to share and enjoy

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus). There is free parking behind the building, accessible from Ludlow Street.

Newcomers are especially welcome.

PMMNG Donates to the MMRF

The Multiple Myeloma Research Foundation (MMRF) held its The MMRF Team for Cures: Philadelphia 5K Walk/Run 2016 on Saturday November 12, 2016. At the event, PMMNG members were pleased to present the MMRF with a donation of $30,000, raised largely during our annual Miles for Myeloma 5K Run/Walk fundraiser this spring.

Here are a couple of photos from Saturday’s MMRF event. In the first photo are PMMNG members Phil Falkowitz and Cindy Chimilewski , along with Dr. Edward Stadtmauer, from Abramson Cancer Center at UPenn, who was the Honorary Race Chair.

_MG_4527 _MG_4569

Late Fall 2016 Upcoming Events

November 17, 2016 1:00 pm EST. Myeloma Crowd Radio – “Personalized Medicine in Myeloma” with Craig Cole, MD, University of Michigan Call In by Phone to Listen Live: (347) 637-2631 or Listen Live Via Computer

November 17th 7:00 pm EST – IMF teleconference “What to look for in this year’s meeting of the world’s best researchers on MM at the American Society for Hematology annual conference” with Dr. Brian Durie. Registration required

November 18thPenn Blood Cancer Conference Hilton Hotel City Avenue, 4200 City Avenue, Philadelphia, PA 19131 Registration required

Saturday November 12, 2016: “From Uninsured to Underinsured: Strategies to Improve Financial Well-Being During and After Cancer Treatment” by Christina Bach

At our November meeting, Christina Bach, MBE, MSW, LCSW, will be speaking on the topic “From Uninsured to Underinsured: Strategies to Improve Financial Well-Being During and After Cancer Treatment”. In addition to addressing health insurance concerns, she will provide information about the new oral parity law that was recently passed in PA. Christina, a long-time oncology social worker, is currently the Educational Content Specialist and Psychosocial Content Editor for Oncolink, an online resource for cancer information.

Slides from Christina’s presentation

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus). There is free parking behind the building, accessible from Ludlow Street.

Newcomers are especially welcome.

Saturday October 8, 2016: Patient and Caregiver Split

For the October meeting, we will be splitting into Patient and Caregiver groups after the general announcements. Each group will have a facilitator and will be an opportunity for questions, discussions and information-sharing with others who are in a similar situation.

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus). There is free parking behind the building, accessible from Ludlow Street.

Newcomers are especially welcome.

Fall 2016 Upcoming Events

September: Blood Cancer Awareness Month

Help the MMRF raise funds for #myeloma research just by uploading a photo!

Each time you upload a photo to the MMRF through the Donate A Photo app Johnson & Johnson will donate $1 to help us advance research! You can donate one photo per day until the donation period ends on September 30th, or until we reach the maximum donation amount.
Donate a Photo – a free charity app by Johnson & Johnson Services, Inc.

September 20: Ninlaro Educational Program

Learn about Ninlaro, a new oral therapy for patients who have received at least one prior treatment for multiple myeloma

Renaissance Allentown Hotel, 12 North 17th St., Allentown, PA

For more info or to register call 844-247-1641

September 22: FREE “Living Well with Myeloma” teleconference on CAR T-Cell Therapy

For more info or to register: http://bit.ly/2cphZzV

October 1: MMRF Myeloma Patient Summit

John Theurer Cancer Center at HUMC

32 Second Street

Hackensack, NJ 07601

For more info of to register: http://bit.ly/2cAu5RA

October 8: PMMNG October Meeting

Patient & Caregivwe Split

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus). There is free parking behind the building, accessible from Ludlow Street

October 15: MyelomaCrowd Patient Meeting

Mt. Washington Conference Center

5801 Smith Avenue

Baltimore, MD 21209

For info and to register: http://buff.ly/2bowfTq

November 14: MMRF 5K in Philadelphia

4231 Avenue of the Republic, Memorial Hall – Fairmont Park

For more info or to register: https://www.themmrf.org/team-events/philadelphia-2016/

Takeda’s Music to Fight Myeloma -

Making a difference never sounded so good! Music2FightMyeloma raises funds & awareness. Join bit.ly/2bVHrb1

Upcoming TweetChats 

4:00-5:00 PM ET #mmsm hashtag

9/28 @Amyloid_Planet #Amyloidosis

10/26 @szumani Daratumumab

11/2 @MyelomaMD ASCENT SMM

11/16 @MyelomaMD IMWG response & MRD

 

September 10, 2016: Open Meeting for Sharing Information and Experiences

Hello PMMNG friends,

Our next meeting will be Saturday September 10, 2016. This will be an open meeting for sharing information and experiences. As we wind down the summer and begin transitioning into autumn, this will be a good chance to check in and share how we have all been doing, as well an opportunity to catch up on the latest myeloma-related news. We hope you will be able to join us!

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus). There is free parking behind the building, accessible from Ludlow Street.

Newcomers are especially welcome.

Mike Burns (PMMNG webmaster)

August, 2016: No Meeting

Hello PMMNG friends,

Just a reminder that there will be no PMMNG meeting in August, as is our custom. Our next meeting will be on Saturday September 10, 2016. As we get closer to that date, we’ll provide information about the program for the meeting.

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus). There is free parking behind the building, accessible from Ludlow Street.

Newcomers are especially welcome.

Best wishes for a healthy and happy remainder of the summer.

July 9, 2016 Meeting: Paitent & Caregiver Split

In July, we will be splitting into Patient and Caregiver groups after the general announcements. Each group will have a facilitator and will be an opportunity for questions, discussions and information-sharing with others who are in a similar situation.

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus). There is free parking behind the building, accessible from Ludlow Street.

Newcomers are especially welcome.

Cancer Moonshot Initiative

Hi PMMNG Friends,

Here is a special invitation from the Cancer Support Community of Philadelphia:

Please join us on Wednesday, June 29th at 9:00 a.m. at our Gilda’s Club location in Warminster for a special initiative convened by the United States White House Cancer Moonshot Taskforce and Vice President Joe Biden. Similar summits across the country will take place that day with the goal of opening dialogue and encouraging collaborations for accelerating the pace of progress in cancer research, prevention, treatment, and care. We will begin the day with light breakfast beginning at 8:30 am.
All are invited to attend – patients, survivors, caregivers, oncologists, researchers, philanthropists, advocates, dignitaries and data experts – to gather under the national charge to raise awareness and forge progress toward a cure.  A livestream of remarks from the Vice President will be presented.  The Moonshot summits are intended to spur discussions, generate ideas, and bring communities together to talk about the impact of cancer. More information about the Cancer Moonshot initiative can be found at https://www.whitehouse.gov/cancermoonshot . Please RSVP at 215-440-3290 or aly@cancersupportphiladelphia.org
200 Kirk Road, Warminster, PA 18974 215.441.3290
4100 Chamounix Drive, Philadelphia, PA 19131215.879.7733