Opportunity Drawing Update

There has been an upgrade in one of our prizes for the opportunity drawing.

Our 2nd prize will be a 48″ TV, (not the 40″ that was previously advertised)

Please be prepared to bring in any unsold tickets and purchase new ones at this Saturday’s (April 12) meeting.  If you still want to sell tickets and will be at the race, you can bring them at that time or mail them to:

Marilyn Alexander
1605 Steamboat Station
Southampton, PA 18966

Thanks and good luck!

April 12 Meeting with Susan Cunneen, RN

Join us on Saturday, April 12, when we will feature Susan Cunneen, RN, Oncology Clinical Nurse Educator at Onyx Pharmaceuticals, speaking on the topic of “Planning for Survivorship.”

Ms. Cunneen graduated with a Bachelor of Science in Business Administration in 1988 and subsequently spent over 20 years in the pharmaceutical industry in sales, sales management and marketing. Her specialties were in the areas of infectious diseases and oncology. While working in oncology, Susan was so moved by the patients and by the oncology nurses with whom she worked that she decided to go back to school to get a clinical degree. She went to Georgetown University where she received a Bachelor of Science in Nursing, and then worked as an inpatient oncology nurse at the Washington Hospital Center. Susan now is a clinical nurse educator with Onyx Pharmaceuticals in the mid-Atlantic area.  Her role is to educate oncology nurses as well as work directly with myeloma patients.

As always, newcomers are greatly welcomed.

PMMNG Monthly Meetings
Second Saturday of every month
1:30 PM – 3:30 PM
Ralston House, 3615 Chestnut Street, Philadelphia, PA

(Near the University of Pennsylvania Campus)

Miles for Myeloma 2014 Fundraiser — Info and Updates

As announced on our home page weeks ago, our 2014 Miles for Myeloma fundraiser is open for business, prepping to take place on Saturday, April 26, in a new location: Memorial Hall (site of the Please Touch Museum) in Philadelphia’s beautiful Fairmount Park.

Complete information is available on our site, just CLICK HERE for everything you need to know about registration, donations, team building, course info and more.

Direct links for Registration and Donations.

For more information, please contact Karen Horan at karen.horan@verizon.net.

March 8 Meeting: Velcade Patient Education Program with Joshua Richter, MD

Join us on Saturday, March 8, when we will feature a “Velcade Patient Education Program,” with guest speaker Joshua Richter, MD, of the John Theurer Cancer Center at Hackensack University Medical Center. (Rescheduled from December 2013.)

As always, newcomers are greatly welcomed.

PMMNG Monthly Meetings
Second Saturday of every month
1:30 PM – 3:30 PM
Ralston House, 3615 Chestnut Street, Philadelphia, PA

(Near the University of Pennsylvania Campus)

February 8 Meeting: Dan Vogel, MD, Abramson Cancer Center

Frequent guest speaker Dr. Dan Vogl, of the Abramson Cancer Center (who serves as Medical Advisor to the PMMNG, along with Dr. Edward Stadtmauer), will report on recent research findings from the American Society of Hematology’s Annual Meeting of December 2013. Dr. Vogl’s annual presentation is always greatly informative, providing new insights into advances in myeloma treatment and research.

drvoglDr. Dan Vogl speaking at the 2009 Miles for Myeloma 5K

Monthly Meeting Information

WHEN: Second Saturday of Every Month, 1:30 – 3:30 PM
WHERE: RALSTON HOUSE, 3615 Chestnut Street, Philadelphia, PA
(Near the University of Pennsylvania Campus)
There is free parking behind Ralston House off of Ludlow Street.

 

January 11 Meeting: Patient and Caregiver Open Discussions (with Lori Curtis)

The PMMNG holds its inaugural meeting of 2014 on Saturday, January 11, with separate open discussions for patients and caregivers, supplying an opportunity to share opinions freely. An excellent opportunity to bond with your peers, get some advice or just listen in. Board member and social worker Lori Curtis will also be in attendance.

  • 1:30 PM:  General announcements
  • 1:45 PM:  Open Discussion
  • 2:00 PM:  Patient-Caregiver Split

Please join us, whether you’re a long-time member of the group or have reason to consider attending for the first time.

Monthly Meeting Information

WHEN: Second Saturday of Every Month, 1:30 – 3:30 PM
WHERE: RALSTON HOUSE, 3615 Chestnut Street, Philadelphia, PA
(Near the University of Pennsylvania Campus)
There is free parking behind Ralston House off of Ludlow Street.

CANCELLED: December 14 Holiday Celebration and Velcade Patient Education Program

Regrettably, our December 14 meeting has been cancelled due to the severe weather forecast for Saturday. The Velcade Patient Education Program with Dr. Joshua Richter will be re-scheduled as as soon as possible.

PMMNG Monthly Meetings
Second Saturday of every month (barring inclement weather)
1:30 PM – 3:30 PM
Ralston House, 3615 Chestnut Street, Philadelphia, PA

(Near the University of Pennsylvania Campus)

Oncology Expert Lecture Series: “New Directions in the Management of Multiple Myeloma” — November 21

Nurse-practitioner Patricia Mangan, MSN, CRNP, of the Abramson Cancer Center, will lecture on “New Directions in the Management of Multiple Myeloma,” on Thursday, November 21, 4 – 5 PM, at the Hospital of the University of Pennsylvania, as part of the Pennsylvania State Nurse Association’s continuing nursing education program.

For more information, please contact Christine Lombardi at christine.lombardi@uphs.upenn.edu

Breathing Room Foundation to Host Info/Tailgate Party

The Breathing Room Foundation is a Delaware Valley group providing care and support to local families affected by cancer. On Sunday, November 3, the BRF will host an Eagles “Tailgate Party” at the Great American Pub, in Conshohocken, PA, beginning at 3 PM, to explain volunteer opportunities within the organization and to share in some Eagles pride.  New or current Breathing Room Foundation volunteers are welcome. For more information, please contact Mary Ellen Fitzgerald at 215-570-0530 or Eileen Carissimi at 215-740-3076.

Click for event flyer.

In 2014, the BRF will expand its programs in Delaware and Montgomery Counties.  The recruitment of new volunteers is essential to carry out its vision of bringing cancer support services to a larger population.  In 2012, Breathing Room volunteers helped 450 families in the Delaware Valley. Services included transportation for treatment, companionship, childcare and house maintenance.  In addition, many patients received regular meals and groceries and help with other ancillary expenses such as utility bills, prescriptions and medical supplies, rent, clothing and cleaning.