Fall 2016 Upcoming Events

September: Blood Cancer Awareness Month

Help the MMRF raise funds for #myeloma research just by uploading a photo!

Each time you upload a photo to the MMRF through the Donate A Photo app Johnson & Johnson will donate $1 to help us advance research! You can donate one photo per day until the donation period ends on September 30th, or until we reach the maximum donation amount.
Donate a Photo – a free charity app by Johnson & Johnson Services, Inc.

September 20: Ninlaro Educational Program

Learn about Ninlaro, a new oral therapy for patients who have received at least one prior treatment for multiple myeloma

Renaissance Allentown Hotel, 12 North 17th St., Allentown, PA

For more info or to register call 844-247-1641

September 22: FREE “Living Well with Myeloma” teleconference on CAR T-Cell Therapy

For more info or to register: http://bit.ly/2cphZzV

October 1: MMRF Myeloma Patient Summit

John Theurer Cancer Center at HUMC

32 Second Street

Hackensack, NJ 07601

For more info of to register: http://bit.ly/2cAu5RA

October 8: PMMNG October Meeting

Patient & Caregivwe Split

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus). There is free parking behind the building, accessible from Ludlow Street

October 15: MyelomaCrowd Patient Meeting

Mt. Washington Conference Center

5801 Smith Avenue

Baltimore, MD 21209

For info and to register: http://buff.ly/2bowfTq

November 14: MMRF 5K in Philadelphia

4231 Avenue of the Republic, Memorial Hall – Fairmont Park

For more info or to register: https://www.themmrf.org/team-events/philadelphia-2016/

Takeda’s Music to Fight Myeloma -

Making a difference never sounded so good! Music2FightMyeloma raises funds & awareness. Join bit.ly/2bVHrb1

Upcoming TweetChats 

4:00-5:00 PM ET #mmsm hashtag

9/28 @Amyloid_Planet #Amyloidosis

10/26 @szumani Daratumumab

11/2 @MyelomaMD ASCENT SMM

11/16 @MyelomaMD IMWG response & MRD

 

September 10, 2016: Open Meeting for Sharing Information and Experiences

Hello PMMNG friends,

Our next meeting will be Saturday September 10, 2016. This will be an open meeting for sharing information and experiences. As we wind down the summer and begin transitioning into autumn, this will be a good chance to check in and share how we have all been doing, as well an opportunity to catch up on the latest myeloma-related news. We hope you will be able to join us!

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus). There is free parking behind the building, accessible from Ludlow Street.

Newcomers are especially welcome.

Mike Burns (PMMNG webmaster)

August, 2016: No Meeting

Hello PMMNG friends,

Just a reminder that there will be no PMMNG meeting in August, as is our custom. Our next meeting will be on Saturday September 10, 2016. As we get closer to that date, we’ll provide information about the program for the meeting.

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus). There is free parking behind the building, accessible from Ludlow Street.

Newcomers are especially welcome.

Best wishes for a healthy and happy remainder of the summer.

July 9, 2016 Meeting: Paitent & Caregiver Split

In July, we will be splitting into Patient and Caregiver groups after the general announcements. Each group will have a facilitator and will be an opportunity for questions, discussions and information-sharing with others who are in a similar situation.

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus). There is free parking behind the building, accessible from Ludlow Street.

Newcomers are especially welcome.

Cancer Moonshot Initiative

Hi PMMNG Friends,

Here is a special invitation from the Cancer Support Community of Philadelphia:

Please join us on Wednesday, June 29th at 9:00 a.m. at our Gilda’s Club location in Warminster for a special initiative convened by the United States White House Cancer Moonshot Taskforce and Vice President Joe Biden. Similar summits across the country will take place that day with the goal of opening dialogue and encouraging collaborations for accelerating the pace of progress in cancer research, prevention, treatment, and care. We will begin the day with light breakfast beginning at 8:30 am.
All are invited to attend – patients, survivors, caregivers, oncologists, researchers, philanthropists, advocates, dignitaries and data experts – to gather under the national charge to raise awareness and forge progress toward a cure.  A livestream of remarks from the Vice President will be presented.  The Moonshot summits are intended to spur discussions, generate ideas, and bring communities together to talk about the impact of cancer. More information about the Cancer Moonshot initiative can be found at https://www.whitehouse.gov/cancermoonshot . Please RSVP at 215-440-3290 or aly@cancersupportphiladelphia.org
200 Kirk Road, Warminster, PA 18974 215.441.3290
4100 Chamounix Drive, Philadelphia, PA 19131215.879.7733

June 11, 2016 Meeting: Multiple Myeloma & Dental Concerns

Hello PMMNG Friends,

At our June 11th meeting, Gary Jones, DDS, Associate Clinical Professor at Temple University’s Kornberg School of Dentistry, will speak on specific dental concerns for people with multiple myeloma, such as infections and  osteonecrosis of the jaw (ONJ), as well as how to best maintain good oral health.

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus). There is free parking behind the building, accessible from Ludlow Street.

Newcomers are especially welcome.

Sidney Kimmel Cancer Center Survivorship Celebration

You are invited to join in the Celebration of all Cancer Survivors for Sidney Kimmel Cancer Center’s Survivorship Celebration!
What: Survivorship Celebration: Tools for Healthy Living
When: June 8th, 2016 11:30 am – 3:30 pm
Where: Dorrance H. Hamilton Building, 1001 Locust Street, Philadelphia

Schedule:
11:30-12:30 noon – Lunch and Health Fair

12:45-1:30 pm – Tools for Healthy Living
Nicole Simone, MD, and Daniel Monti, MD, will present their research-based recommendations for incorporating healthy lifestyle changes into your life to enhance your well-being through exercise, diet, nutrition, and stress reduction.

Breakout sessions:
1:45 – 2:30
• Staying Calm during the Storm, Ruth N. Feinblum, LCSW
• Exercise During and After Cancer Treatment, Nicole L. Dugan, PT, DPT, CLT-LANA, & John C. Hartnett, PT, DPT

2:45 – 3:30 pm
• Introduction to Mindfulness-Based Stress Reduction, Diane Reibel, PhD
• Wellness Yoga, Michelle Stortz, Yoga Therapist
• Fighting Cancer with your Fork, Jacqueline M Diamond, Clinical Dietician

To register, call: 1-800-JEFF-NOW
When you register, please choose the breakout sessions that you’ll be attending, one from each time slot.

For questions, please contact: Katherine Rehm (Katherine.Rehm@Jefferson.edu,  215-503-7975)

Brochure

May 14, 2016 Meeting – “Building Resiliency, Living with Uncertainty”

Hello PMMNG Friends,

In May our guest speaker will be Kava Schafer, MDiv, MA. The title of her presentation is “Building Resiliency, Living with Uncertainty.” Ms. Schafer is a non-denominational chaplain with the Abramson Cancer Center’s Palliative Care Program. She plans to present on ways of gaining control when living with myeloma, avoiding distress and coming to peace with dying. She is a compassionate speaker and listener who has helped many live with their severe, chronic illnesses with more peace within themselves.

Kava Schafer, MDiv, MA is the palliative care chaplain at the Hospital of the University of Pennsylvania. Kava received her MDiv from Harvard Divinity School. Holding a graduate degree in Holistic Spirituality and certified as a spiritual director, she incorporates holistic strategies in her accompaniment of people living with cancer. Chaplain Schafer is also a Reiki master. She has written numerous articles on the role of spirituality, healing, and the cancer experience. Her most recent article is titled: Death as Spiritual Teacher:  End-of-Life Lessons for the Living published in Presence:  an International Journal of Spiritual Direction, June 2011.  Kava also maintains a private practice as a spiritual director for individuals, couples and families.

PMMNG meetings are held the second Saturday of every month (except August), 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (near the University of Pennsylvania campus). There is free parking behind the building, accessible from Ludlow Street.

Newcomers are especially welcome.

Nancy Stewart & Cindy Chimielewski Attend CURE Heroes Award Ceremony

Hi PMMNG friends,

PMMNG members Nancy Stewart and Cindy Chimielewski attended the CURE Multiple Myeloma Heroes Award Gala on March 18 at the Eden Roc Hotel in Miami, FL. Nancy attended because she nominated Mike Katz, who was honored as a member of the inaugural group of CURE Multiple Myeloma Heroes. Cindy attended as Nancy’s guest.

As some of you may know, Mike Katz, from the New York city area, was a tireless patient advocate for multiple myeloma and other cancers. Sadly, he died about a year ago.

Below are some photos from the Gala, as well as a copy of Nancy’s nomination form for Mike.

For more information about the Gala and the inaugural class of Multiple Myeloma Heroes, please visit CURE’s web page about the event.

 

MM-151ANancy Stewart, Marlee Matlin (keynote speaker), Jason Katz (who accepted the award for his father), and Kathy LaTour (CURE Magazine Mistress of Ceremonies)

 

MM-133ADr. Sundar Jagannath (Director of the Multiple Myeloma Program at Mt. Sinai Hospital in NYC), Sharon Katz (Jason Katz’s wife), and Jason Katz

 

MM-112AMarlee Matlin, Cindy Chimielewski, and two unidentified attendees

 

img046Nancy Stewart’s nomination form for Mike Katz

April 9, 2016 Meeting – No Meeting

Hello everyone,

Just a reminder that there will be no April, 2016 PMMNG meeting.

Instead, many of us will be attending the International Myeloma Foundation’s Patient & Family Seminar in Philadelphia on April 8-9. We encourage you to consider attending too! These seminars provide vital, up-to-date information about multiple myeloma presented by experts. In addition there are plenty of opportunities to share experiences with other myeloma patients and caregivers.

Registration is still open.