December 13: End-of-year holiday celebration

Please join us at our next group meeting on Saturday, December 13, when we will celebrate the holiday season and another successful year of mutual support.

PMMNG meetings are held the second Saturday of every month, 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (Near the University of Pennsylvania Campus). There is free parking behind Ralston House, accessible from Ludlow Street.

Newcomers are especially welcome.

Blood Cancer Conference — November 21

The Abramson Cancer Center will hold its “8th Focus on Leukemia, Lymphoma, Myeloma, Bone Marrow/Stem Cell Transplantation” on Friday, November 21, at the Hilton Hotel, 4200 City Avenue, Philadelphia, 7:30 am – 2 pm. 

WHO SHOULD ATTEND?
If you are newly diagnosed, in treatment, long-term survivor; caregiver or loved one of someone with:
  • Leukemia, Lymphoma, Mutiple Myeloma
  • Myelodysplasia, Myeloproliferative Diseases
  • MGUS, AMM
  • Bone Marrow/Stem Cell Transplantation: autologous or allogeneic, and cellular therapies
  • Nurses and Social Workers”

CLICK HERE TO REGISTER

November 8 Meeting: Financial Assistance Programs

Please join us at our next group meeting on Saturday, November 8, when we will feature Christina Bach, MBE, MSW, LCSW, OSW-C, discussing financial assistance programs relating to coverage of myeloma treatment. Ms. Bach is the Education Director at the Association of Oncology Social Work and the Educational Content Specialist for Oncolink.

UPDATE: Ms. Bach has generously allowed her presentation, “Overview of Co-Pay Assistance and Financial Assistance Resources,” available for download. CLICK HERE to access the PowerPoint file (2.5 MB). If you experience difficulties viewing the file, please contact the webmaster at jroberts @ joshuaroberts.com.

PMMNG meetings are held the second Saturday of every month, 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (Near the University of Pennsylvania Campus). There is free parking behind Ralston House, accessible from Ludlow Street.

Newcomers are especially welcome.

October 11 Meeting: Patient and Caregiver Open Discussions

The PMMNG’s upcoming meeting on Saturday, October 11, will feature separate open discussions for patients and caregivers, supplying an opportunity to share opinions freely. General schedule:

1:30 PM:  General announcements

1:45 PM:  Open Discussion

2:00 PM:  Patient-Caregiver Split

Please join us, whether you’re a long-time member of the group or have reason to consider attending for the first time.

Monthly Meeting Information

WHEN: Second Saturday of Every Month, 1:30 – 3:30 PM

WHERE: RALSTON HOUSE, 3615 Chestnut Street, Philadelphia, PA

(Near the University of Pennsylvania Campus)

There is free parking behind Ralston House off of Ludlow Street.

September 13 Meeting: Smoldering Myeloma, A Discussion with Brendan M. Weiss, MD

Please join us at our next group meeting on Saturday, September 13, when Dr. Brendan M. Weiss of the Abramson Cancer Center, and Assistant Professor of Medicine at the Hospital of the University of Pennsylvania, will discuss the signs and treatment of smoldering myeloma.

PMMNG meetings are held the second Saturday of every month, 1:30-3:30 PM, at the RALSTON HOUSE, 3615 Chestnut Street, Philadelphia, PA (Near the University of Pennsylvania Campus). There is free parking behind Ralston House off of Ludlow Street.

Newcomers are especially welcome.

Donate to PMMNG with AmazonSmile

AmazonSmilePMMNG-button

The PMMNG has registered with AmazonSmile, which donates 0.5% of the price of all purchases made through Amazon to recognized charity organizations such as our own. Simply click the button on the right, or go directly to smile.amazon.com, to begin. Once you’ve signed into Amazon, select PMMNG in the available search field. That’s all there is to it!

For more details, click here.

Summer Break

A reminder that the PMMNG does not meet in the month of August. We look forward to seeing you in September, when our guest will be Dr. Brendan Weiss of HUP, discussing details of smoldering myeloma. Enjoy your summer break…stay cool and healthy!

July 12 Meeting: Patient and Caregiver Open Discussions

The PMMNG holds its last summer meeting of 2014 on Saturday, July 12, with separate open discussions for patients and caregivers, supplying an opportunity to share opinions freely. An excellent opportunity to bond with your peers, get some advice or just listen in.

  • 1:30 PM:  General announcements
  • 1:45 PM:  Open Discussion
  • 2:00 PM:  Patient-Caregiver Split

Please join us, whether you’re a long-time member of the group or have reason to consider attending for the first time.

THE PMMNG WILL NOT MEET IN AUGUST.

Monthly Meeting Information

WHEN: Second Saturday of Every Month, 1:30 – 3:30 PM
WHERE: RALSTON HOUSE, 3615 Chestnut Street, Philadelphia, PA
(Near the University of Pennsylvania Campus)
There is free parking behind Ralston House off of Ludlow Street.

ACOR Myeloma Listserv Migrating to Smart Patients on June 15th

“For the past few months, we have been in the process of migrating the ACOR myeloma listserv to a new platform developed by the founders of ACOR called Smart Patients. Thus far, we’ve had almost 800 people sign up for the new platform and begin using SmartPatients. If you haven’t already done so, you can sign up for SmartPatients by going to http://smartpatients.com/myeloma

“As we had said some time ago, the ACOR list will be deactivated on June 15th. This means that the listserv will not accept new subscriptions or new posts after that date. The archives will remain accessible to current subscribers indefinitely.

“Please feel free to email me privately with any questions/issues. I am trying to schedule a webinar in a few weeks to walk through how the site works and answer questions.”

Mike Katz

Mike.S.Katz@STRATEGYAND.PWC.COM