PMMNG Annual Report, 2009 – 2014

The Philadelphia Multiple Myeloma Group is proud to post its first Annual Report, covering the years 2009 – 2014. As we reflect back on the past five years, we are so pleased to see the growing impact that our organization has had on the myeloma community in the greater Philadelphia area and beyond.

Since forming our 501(c)(3) non-profit entity in 2009, we have seen our membership grow to over 400 individuals; our educational programs expand to feature leading experts in the treatment and quality of life issues of living with myeloma; and the funds we have raised for research and patient support programs near $750,000. Along the way, our reach within the community has multiplied through our partnerships with medical staff at local cancer centers that increasingly refer patients and their families to our group.

February 14 Meeting: ASH Update with Dr. Dan Vogl

Please join us at our next group meeting on Saturday, February 14, when we will feature frequent guest speaker Dr. Dan Vogl, of the Abramson Cancer Center. Dr. Vogl is the Medical Advisor to the PMMNG (along with Dr. Edward Stadtmauer), and will report on recent research findings from the American Society of Hematology’s Annual Meeting of December 2014.

UPDATE: Dr. Vogl’s presentation, New Therapeutic Data and Novel Agents for Myeloma: Update from ASH 2014,” is now available for download (PDF). We greatly appreciate Dr. Vogl making this report available to our members.

PMMNG meetings are held the second Saturday of every month, 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (Near the University of Pennsylvania Campus). There is free parking behind Ralston House, accessible from Ludlow Street.

Newcomers are especially welcome.

Call for Nominations for the Brian Durie Humanitarian Award

The Philadelphia Multiple Myeloma Networking Group is seeking nominees for the Brian Durie Humanitarian Award, presented annually to someone who has made a positive difference in the field of myeloma treatment. The award will be given at our upcoming “Miles for Myeloma” fundraiser on April 25, 2015. Dr Brian Durie is a world-renowned myeloma specialist, and the Medical Director and Co-Founder of the International Myeloma Foundation, who has been very supportive of our group for many years. We honor him at our annual fundraisers by acknowledging in his name an individual who has made an impact in the effort to fight myeloma.

The nominee should be committed to finding a cure for myeloma, whether through research, education, financial support or volunteering. This person can be a medical professional, such as a doctor or a nurse, or other individuals in non-medical fields, such as a social worker, educator, philanthropist, fundraiser or caregiver. We are looking for people who inspire you and offer you and your family a sense of hope.

DEADLINE: March 15, 2015

Click here to download the nomination form.

E-mail completed nomination forms (as attachments) to any of our following board members:

Sharon Alexander: salex16@comcast.net
Marilyn Alexander: malex19115@comcast.net
Nancy Stewart: n_nstewart@msn.com

Thank you!

Season’s Greetings and….

The PMMNG wishes all its members a happy holiday season and a splendid New Year. We also want to remind you of our upcoming group meeting, the first of 2015, on Saturday, January 10, with separate open discussions for patients and caregivers, supplying an opportunity to share opinions freely. An excellent opportunity to bond with your peers, get some advice or just listen in. We’ll see you then….

December 13: End-of-year holiday celebration

Please join us at our next group meeting on Saturday, December 13, when we will celebrate the holiday season and another successful year of mutual support.

PMMNG meetings are held the second Saturday of every month, 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (Near the University of Pennsylvania Campus). There is free parking behind Ralston House, accessible from Ludlow Street.

Newcomers are especially welcome.

Blood Cancer Conference — November 21

The Abramson Cancer Center will hold its “8th Focus on Leukemia, Lymphoma, Myeloma, Bone Marrow/Stem Cell Transplantation” on Friday, November 21, at the Hilton Hotel, 4200 City Avenue, Philadelphia, 7:30 am – 2 pm. 

WHO SHOULD ATTEND?
If you are newly diagnosed, in treatment, long-term survivor; caregiver or loved one of someone with:
  • Leukemia, Lymphoma, Mutiple Myeloma
  • Myelodysplasia, Myeloproliferative Diseases
  • MGUS, AMM
  • Bone Marrow/Stem Cell Transplantation: autologous or allogeneic, and cellular therapies
  • Nurses and Social Workers”

CLICK HERE TO REGISTER

November 8 Meeting: Financial Assistance Programs

Please join us at our next group meeting on Saturday, November 8, when we will feature Christina Bach, MBE, MSW, LCSW, OSW-C, discussing financial assistance programs relating to coverage of myeloma treatment. Ms. Bach is the Education Director at the Association of Oncology Social Work and the Educational Content Specialist for Oncolink.

UPDATE: Ms. Bach has generously allowed her presentation, “Overview of Co-Pay Assistance and Financial Assistance Resources,” available for download. CLICK HERE to access the PowerPoint file (2.5 MB). If you experience difficulties viewing the file, please contact the webmaster at jroberts @ joshuaroberts.com.

PMMNG meetings are held the second Saturday of every month, 1:30 – 3:30 PM, at the Ralston House, 3615 Chestnut Street, Philadelphia, PA (Near the University of Pennsylvania Campus). There is free parking behind Ralston House, accessible from Ludlow Street.

Newcomers are especially welcome.