What: Webcast
When: Wednesday November 24, 2021 1:00-2:00 PM ET
Where: Web
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Upcoming Myeloma Educational Events
Audrey Burton-Bethke, event, myeloma crowd, Patricia Flores, selinexor, treatment, upcoming, webcast, xpovio
What: Webcast
When: Wednesday December 1, 2021 3:00-4:00 PM ET
Where: Web
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Audrey Burton-Bethke, cbd, Dr. Nirupa J. Raghunathan, event, medical marijuana, myeloma crowd, q&a, side effects, treatment, upcoming, webcast
What: Webcast
When: Thursday December 2, 2021 2:00-3:00 PM ET
Where: Web
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african american community, diagnosis, Diana Soto, event, myeloma crowd, Patricia Flores, programs, q&a, resources, self-advocacy, treatment, upcoming, Valarie Traynham, webcast
What: Webcast
When: Saturday December 4, 2021, 10:00 AM - 1:15 PM ET
Where: Web
autologous stem cell transplant, Dr. Cesar Rodriquez, Dr. David H. Vesole, Dr. Harsh V. Parmar, Dr. Kenneth V. Shain, event, Mary Derome, minimal residual disease, mmrf, newly diagnosed myeloma, patient journey, q&a, research, state of myeloma treatment, stem cell transplant, treatment, upcoming, webcast
What: Webcast
When: Monday, December 6, 2021 11:30 AM - 12:45 PM ET
Where: Web
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covid-19, covid-19 vaccines, Dr. Jim Omel, Dr. Natalie S. Callander, event, exercise, infections, Michelle Lakner, national comprehensive cancer network, nccn, newly diagnosed myeloma, nutrition, q&a, relapsed/refractory, supplements, supportive care, treatment, upcoming, webcast
What: Webcast
When: Wednesday December 8, 2021 7:00-8:00 PM ET
Where: Web
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What: Webcast
When: Wednesday December 15, 2021 3:00-4:00 PM ET
Where: Web
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What: Webcast
When: Thursday December 16, 2021, 1:30 – 2:30 PM ET
Where: Web
ash, cancercare, Carolyn Messner, clinical trials, coronavirus, covid-19, Dr. Michael J. Mauro, Dr. Peter Martin, Dr. Ruben A. Mesa, Dr. William I. Bensinger, event, leukemia, lymphoma, multiple myeloma, myeloproliferative disorders, precision medicine, q&a, research, self-advocacy, telehealth, telemedicine, treatment, upcoming, webcast
What: Webcast
When: Saturday December 18, 2021, 10:00 AM - 1:15 PM ET
Where: Web
Dr. Faith E. Davies, Dr. Jeremy T. Larsen, Dr. Ravi Vij, Dr. Sandy W. Wong, event, immunotherapy, Mary Derome, mmrf, patient journey, precision medicine, q&a, relapsed/refractory, research, treatment, upcoming, webcast
The Philadelphia Multiple Myeloma Networking Group (PMMNG) will have a special virtual (via Zoom) meeting from 1:30-3:00 PM ET on Saturday January 29, 2022. The purpose of the meeting is to help educate members about opportunities for sharing their health data.
Several organizations have recently started efforts to pool patient data in the hope that clinical and genomic information from a large set of patients can help researchers, clinicians and patients make smarter treatment decisions, and help in finding a cure for multiple myeloma.
Mary DeRome, head of patient education for the Multiple Myeloma Research Foundation (MMRF), and Jenny Ahlstrom, founder of Myeloma Crowd and Healthtree, will speak about their groups' efforts in this area. While there are some similarities between the MMRF and Healthtree data sharing approaches, there are also some important differences. Our hope is that this special PMMNG meeting will help our members in deciding whether sharing their data is "right" for them.
Information about the MMRF's CloudCure program
Information about Healthtree's Cure Hub program
health data sharing, Jenny Ahlstrom, Mary Derome, meeting, patient data sharing, research, treatment, upcoming, zoom