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Healthwell Foundation Opens New Fund for COVID-19-Related Costs

Healthwell Foundation logoHealthwell opened up a new fund today which many of our members may be eligible for.

 

It's $250 to help offset the cost of getting deliveries of meds, food, supplies etc. for high risk patients due to COVID-19 self-quarantining.



Here is the link:

https://www.healthwellfoundation.org/fund/covid-19-fund/

 

They are accepting applications by phone only.

 

Best wishes to everyone.  Stay Safe!

Maddie Hunter to Host Patient Power - UAMS Web Program

roadmap
From myventurepad.com

PMMNG leader Maddie Hunter will be the host of a program co-produced by Patient Power and the University of Arkansas for Medical Sciences (UAMS) Myeloma Center entitled "Your Own Myeloma Roadmap: From Diagnosis to Survivorship." The program will be held Saturday April 18th from 9:30 AM to 1:30 PM EDT. It will focus on the question of how to decide about the best treatment option since there are so many choices available now. Speaking during the program will be Dr. Frits van Rhee, Dr. Guido J. K. Tricot, Dr. Dhebli Atrash, Nadine Baxter, and Harold Dean - all from the UAMS Myeloma Center.

You can register here, or see the attached flyer for more details.

Attachments

2020 Miles for Myeloma Will Be a Virtual Race

Miles for Myeloma Hope sign

With a focus on the health and well-being of our participants and the growing concerns over the COVID-19 (coronavirus) outbreak, we are canceling the in-person event that had been scheduled for April 25, 2020. This event is Now Virtual! The safety of our myeloma patients along with their friends and family is our priority. Follow the easy instructions below to register for this new and exciting style of racing.

 

For those of you that have already registered, thank you. You will be receiving a second email with your virtual racing bib. Thank you all for your support and understanding!

 

Miles for Myeloma 5K is a nonprofit event. Its goal is to provide a world-class race for you, the runners that we love. At the same time, this virtual race will provide the necessary funds to help the International Myeloma Foundation to continue our work to find a cure.

 

Run, Walk, Bike, or Treadmill through the Miles for Myeloma 5K! Choose your virtual run and complete it at your pace. You can even run one mile a day over the course of three days, or complete the full run at one time!

Register Today!

PMMNG Members

The Philadelphia Multiple Myeloma Networking Group’s (PMMNG) mission is to be an ongoing resource for myeloma patients, their families and friends.

PMMNG Vision

Provide hope to the Myeloma community through education, companionship, compassion, and advocacy while working toward a cure.

PMMNG Mission

  • Enrich the lives of patients and their families through programs and resources for living with and conquering myeloma
  • Foster connections and dialogue among members at all stages of the myeloma journey
  • Open pathways for patients seeking treatment by building and sustaining relationships with area medical centers, national myeloma organizations and pharmaceutical companies.
  • Provide support for organizations advancing research and financial assistance for myeloma treatment
  • Advocate for research and legislation regarding effective treatment and quality of life

Who We Are

The PMMNG was formed in 1995, and is a diverse group of myeloma patients, their caregivers and support persons.

From an original meeting around a kitchen table, the founding members led the organization to find more appropriate meeting space, an experienced group facilitator and many more members.

Phil Falkowitz and his wife, Barbara, along with Marilyn Alexander and her twin sister, Sharon, mobilized efforts to include patient education, political advocacy and fundraising for Myeloma research. Meeting notices spread throughout the Philadelphia region and relationships with local cancer organizations were established.

In 1999, the growing group found its current home at the Ralston House. The membership list grew to upwards of 300 members. At present, the PMMNG is affiliated with the International Myeloma Foundation (IMF). The PMMNG is led by a Steering Committee and is known in the region as a safe haven for families dealing with myeloma.

Certainly we wish there were no need for a group such as ours, but we take comfort from the fact that we have been able to reach and assist so many more people than the small group who met more than 20 years ago.

Group Facilitators

Maddie Hunter: maddie@hunterunlimited.com or 732-549-7981
Marilyn Alexander: malex19115@comcast.net or 215-694-4146 

Direct Contact

PMMNG: pmmng1@gmail.com

Medical Advisors

Dr. Edward Stadtmauer and Dr. Dan Vogl,
Abramson Cancer Center, University of Pennsylvania