Danielle Doheny

Our next monthly PMMNG meeting will be Saturday June 8, 2024 from 1:30-3:00 PM ET. This meeting with be conducted by Zoom.

Our speaker this month is Danielle Doheny from the International Myeloma Foundation (IMF), who will be speaking about advocacy. Advocacy is the act of supporting a cause or idea. It involves speaking out on issues that you care about and offering ways to improve upon them. Please welcome Danielle as she explains how the IMF works to guide individuals to advocate for critical health issues that affect the multiple myeloma community. This promises to be very enlightening! 

This meeting will also include our usual small group breakout sessions.  Please bring any questions you may have about your journey with myeloma.  In addition, while the meeting itself will begin at 1:30, we will be starting the Zoom at 1:00 pm for anyone interested in having a little more time to talk to one another informally or ask your questions. As always, patients and care partners are welcome to attend. 

Danielle Doheny joined the IMF after a six-year career on Capitol Hill where she worked as an adviser to two members of Congress. As a Congressional staffer, Danielle's primary focus was on healthcare and issues related to energy, the environment, science, and technology. In her role with the IMF, she advocates on behalf of the multiple myeloma community to the executive and legislative branches of the federal government. Danielle's father is a multiple myeloma patient, and she has a unique passion for her work on behalf of patients and their families. Danielle graduated cum laude from Thiel College with a Bachelor of Arts degree in History and from Dartmouth College with a Master of Healthcare Delivery Science degree.

All PMMNG members will receive a meeting invitation via email.  If you are new to the group, contact Barbara Falkowitz ([email protected]) to receive the meeting link. 

***Please make a note that our October meeting is changed from the second Saturday to the first Saturday on October 5, 2024, as the Jewish holiday, Yom Kippur, falls on the second Saturday.

We look forward to seeing you on Zoom!

Attachments:


Rozalynn Hite

Our next monthly PMMNG meeting will be Saturday May 11, 2024 from 1:30-3:00 PM ET. This meeting with be conducted by Zoom.

Rozalynn Hite, Coordinator of the Healthtree Coach program for Multiple Myeloma, will provide an overview of the Healthtree Myeloma Coach program. The Coach program is a collection of patients with multiple myeloma who have been through the training of coaching in the Healthtree system and are available to help anyone with multiple myeloma. Rozalynn will also provide information about Healthtree's CureHub program, where myeloma patients can upload their labs and medical info. These data can then be sent by patients to various institutions for consults, etc. It also helps with research in multiple myeloma. Rozalynn is a care partner for her husband who has multiple myeloma. Rozalynn also is an occupational therapist and mother of three beautiful children. She is passionate about providing support, education, and resources to help others live full and active lives.  

This meeting will also include our usual small group breakout sessions.  Please bring any questions you may have about your journey with myeloma.  In addition, while the meeting itself will begin at 1:30, we will be starting the Zoom at 1:00 pm for anyone interested in having a little more time to talk to one another informally or ask your questions. As always, patients and care partners are welcome to attend. 

All PMMNG members will receive a meeting invitation via email.  If you are new to the group, contact Barbara Falkowitz ([email protected]) to receive the meeting link. 

We look forward to seeing you on Zoom!

Note: The slides from the meeting are attached below.

Attachments:


Tentative list of upcoming PMMNG meeting program topics and speakers:

2024

  • June 2024: "IMF Advocacy" Presented by Danielle Doheny
  • July 2024: "Leukemia and Lymphoma Society Overview" Presented by Ruby Nava-Ramos
  • August 2024: NO MEETING
  • September 2024: "Diet and Multiple Myeloma" Presenter is TBD
  • October 2024: Clinical Trials Panel Discussion
  • November 2024: "Insurance and Financial Update" Presented by Christina Bach
  • December 2024: Year End Celebration

2025

  • January 2025: "Palliative Care" Presenter is TBD
  • February 2025: "American Society of Hematology (ASH) Conference Highlights" Presenter is TBD

General Meeting Information

WHEN: Second Saturday of Every Month (except August)
TIME: 1:30 – 3:30 PM
WHERE: Via Zoom until further notice due to the coronavirus pandemic

In the future we may return to having some in-person or hybrid meetings. 

pmmng meeting