I was a 49 year-old father of five adolescent kids with a demanding job and a time-consuming commute when I was diagnosed with MM in 2003. That news, delivered clumsily by my hematologist, left me shell-shocked in his waiting room for over an hour. Nothing gets your attention like a mid-life reminder of your mortality.
Several organizations offer mentoring opportunities as a way that we can help each other through the multiple myeloma journey. Patients can sign up to have another, experienced patient serve as a mentor. And experienced patients can learn how they can use their experience to mentor other patients. Below are links to some of these opportunities.
Since starting our love affair in 1996, my wife Stephanie and I have shared a passion for travel and adventure. In 2017, having been married for 18 years, we visited Shanghai, Thailand, Laos and Cambodia. The adventures in each venue could fill many pages, but those stories are for another day.
Julie was diagnosed with high-risk multiple myeloma in October, 2020. She was asked by The Patient Story website to tell her story. Her story is so compelling that we asked her to let us link to it.
As the shortest of short summaries, she has undergone 4 lines of treatment in less than 3 years, which includes 2 clinical trials.